Addressing survivorship and palliative care needs in children and adolescents with brain cancer

Dr Natalie Bradford
(Queensland University of Technology
Institute of Health and Biomedical Innovation)

In addition to the potential for premature death, children with brain cancer and their families also deal with potential long-term side effects including seizures, cognitive deficits, pain and fatigue.

For parents and carers, balancing the needs of an acutely unwell child along with the competing demands of family life is a tension not well understood.

These aspects of the childhood cancer experience are often neglected in the healthcare system – and yet, they have serious and profound impacts on kids and families.

Dr Natalie Bradford will conduct desperately needed research into:

• the diverse needs of paediatric brain cancer patients and their families during and after treatment

• the service models which can provide tailored and effective interventions to meet those needs.

Vitally, this research will involve extensive consultation with patients and families, plus interdisciplinary health care teams, service managers and policy makers.

Evidence gained during the consultation process will be used to inform the development and implementation of sustainable services for paediatric brain cancer patients and families to address unmet need, improve equity of access and reduce variation in long-term health outcomes.

Dr Natalie Bradford – Queensland University of Technology – Institute of     Health and Biomedical Innovation, Senior Research Fellow

Dr Stuart Ekberg – Queensland University of Technology – School of   Psychology & Counselling, Senior Research Fellow (ARC Discovery Early     Career Researcher Award)

Dr David Brain – Queensland University of Technology – Australian Centre   for Health Services Innovation (AUSHSI), Research Fellow

Professor Patsy Yates – Queensland University of Technology – School of   Nursing, Head

Dr Timothy Hassall – Children’s Health Queensland Hospital and Health   Service, Oncologist, CCABCR Program Director, Clinical Investigator