A future without brain cancer. Our children deserve nothing less.

The children inspiring the Centre for Child and Adolescent Brain Cancer Research

The incredible families and children affected by brain cancer share their stories of heartbreak, anguish, love and determination.

Above all else, is a united sense of hope that the newly established Centre for Child and Adolescent Brain Cancer Research
can improve outcomes for any child battling against the odds.

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Slater

Slater was diagnosed with a type of brain cancer, known as Ependymoma, when he was just 17 months old. The cancer grows in the passageways where the fluid protecting his brain flows, making it difficult to treat without affecting his brain function. At four years old, Slater is already a veteran of major surgeries, chemotherapy and radiation therapy.

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Rylee

Rylee collapsed when she just 16 months old.  She was rushed from her GP to hospital, and assessed by many specialists before having an MRI. Devastatingly, the MRI revealed that inside Rylee’s tiny head grew an 8cm tumour that was pressing on her brain.

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Max

Max was diagnosed with multiple brain tumours in his ventricle system in August 2014 – when he was just 10 years old. He underwent several major surgeries, the installation of a shunt, and a dual craniotomy. He also endured several rounds of chemotherapy and as a result of surgeries, lost 50 per cent of his vision.

Madeline

Madeline had been experiencing headaches and blurred vision. It was an optometrist who uttered the words: “I think I’ve found something”.  At that point, Madeline and her family had no idea what that was. An MRI confirmed Madeline had Hypothalmic Pilocytic Astocytoma, which would require a year of chemotherapy and ongoing treatment.

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Isaac

At four months of age, Isaac’s parents noticed he had nystagmus (shakey eyes). After a trip to the local GP for his four-month check-up and needles, doctors raised their concern about his eyes and the rapid growth of his head size. Apart from this Isaac was a happy and healthy baby. After being sent to Queensland Children’s Hospital, Isaac underwent many tests and scans to diagnose hydrochephalus, which was being caused by a large tumour in the centre of his brain.

Cooper

Cooper was 8 when he was diagnosed with brain cancer. The tumour was positioned deep in the centre of his brain and it had impacted on his Pituitary Gland. Because of the size of the tumour, none of his spinal fluid that travels around the brain and up and down the spine could drain away, causing pressure on his brain and his massive headaches.

About the Centre

An Australian-first research centre brings together the ‘best of the best’ in paediatric brain cancer research to bring new hope to children and young people fighting this devastating disease.

Research projects

Led by a team of experienced researchers, these projects aim to double survival rates and improve the quality of life of people living with brain cancer over the next 10 years, while working to find a cure.

Our reason why

Brain cancer claims the life of one Australian child every 11 days – more than any other disease. Meet the inspirational children who are the very real faces of childhood brain cancer.

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