Callum’s story Home Callum’s story At only nine weeks old, Callum’s doctors discovered he had airway deformities and Callum underwent major surgery to help him breath. Callum was born with unusual breathing. Mum Stacey watched as her precious baby struggled with feeding and would sleep all the time. At only nine weeks old, Callum’s doctors discovered he had airway deformities and Callum underwent major surgery to help him breath. Because of issues with refluxing and allergies, Callum needed to be fed directly into his intestines and lung infections meant an extended stay in hospital. He spent the next 18 months on oxygen to help keep him stable. At aged two Callum was experiencing multiple seizures and was diagnosed with epilepsy. Callum suffers from nocturnal and absent seizures, which he is sedated for each night as tiredness and stress are his main triggers. Having two older sons to care for as well as Callum mum Stacey explains “We would be quite literally stuck without the help of the volunteers especially in the playroom.” “The number of times I have had to bring his brothers to appointments because we either had no other help or I was going to miss a school pick up and drop off, has been incredible. We have been fortunate enough to attend magic and light shows as a family using tickets provided by the Foundation. These experiences allow us to get out and do something fun with the older kids as well and spend time together without worrying about the day to day struggles.” “We have also found the music therapy great for lowering Callum’s anxiety during his hospital stays. The smiles it brings are priceless.” Story written and details correct June 2019 Your donation will help fund life-saving medical research and critical equipment, and provide the highest level of care for sick kids, just like Callum. 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