Jordan’s story Home Jordan’s story At just 10 days old Jordan was diagnosed with phenylketonuria, which means he needs to radically control his protein intake. Jordan will never try a chicken nugget, will never be able to eat the fish he catches, or enjoy a hot Milo on a cold night. At just 10 days old Jordan was diagnosed with phenylketonuria (PKU), which means he needs to radically control his protein intake. As an infant this meant drinking a low-protein formula. Now he’s older Jordan proudly announces to his friends that he’s vegan and he continues to drink a formula, called a PKU Cooler, three times a day to keep his brain healthy. It’s his favourite drink. If PKU is not treated, phenylalanine, an amino acid in the blood, can build up to harmful levels in the body, causing intellectual disability and other serious health problems. Mum, Rebecca recalls “I was heartbroken at the thought my child will never be able to enjoy the foods his peers will. I then thought if I failed his dietary needs in any way, he would suffer brain damage. After a week or so, I consoled myself with the fact that his condition does not produce an anaphylactic condition which could kill him, unlike the consequences for children with severe allergies.” Jordan’s mental development has been excellent, when he’s not helping out with the animals on his family’s 10 acre property, he loves to draw and play music. Up until a few years ago the family visited the Queensland Children’s Hospital three to four times a year, now because Jordan is doing so well, they are able to stay in touch through the telehealth system. Story written and details correct June 2019 Your donation will help fund life-saving medical research and critical equipment, and provide the highest level of care for sick kids, just like Jordan. Donate Once Donate Monthly Your donation will work wondersfor sick kids today.Would you like to donate monthly? Your donation of will work wonders for sick kids Your Details Can't find your address? State*ACTNSWNTQLDSATASVICWA Country Afghanistan Åland Islands Albania Algeria American Samoa Andorra Angola Anguilla Antarctica Antigua and Barbuda Argentina Armenia Aruba Australia Austria Azerbaijan Bahamas Bahrain Bangladesh Barbados Belarus Belgium Belize Benin Bermuda Bhutan Bolivia, Plurinational State of Bonaire, Sint Eustatius and Saba Bosnia and Herzegovina Botswana Bouvet Island Brazil British Indian Ocean Territory Brunei Darussalam Bulgaria Burkina Faso Burundi Cambodia Cameroon Canada Cape Verde Cayman Islands Central African Republic Chad Chile China Christmas Island Cocos (Keeling) Islands Colombia Comoros Congo Congo, the Democratic Republic of the Cook Islands Costa Rica Côte d'Ivoire Croatia Cuba Curaçao Cyprus Czech Republic Denmark Djibouti Dominica Dominican Republic Ecuador Egypt El Salvador Equatorial Guinea Eritrea Estonia Ethiopia Falkland Islands (Malvinas) Faroe Islands Fiji Finland France French Guiana French Polynesia French Southern Territories Gabon Gambia Georgia Germany Ghana Gibraltar Greece Greenland Grenada Guadeloupe Guam Guatemala Guernsey Guinea Guinea-Bissau Guyana Haiti Heard Island and McDonald Islands Holy See (Vatican City State) Honduras Hong Kong Hungary Iceland India Indonesia Iran, Islamic Republic of Iraq Ireland Isle of Man Israel Italy Jamaica Japan Jersey Jordan Kazakhstan Kenya Kiribati Korea, Democratic People's Republic of Korea, Republic of Kuwait Kyrgyzstan Lao People's Democratic Republic Latvia Lebanon Lesotho Liberia Libya Liechtenstein Lithuania Luxembourg Macao Macedonia, the former Yugoslav Republic of Madagascar Malawi Malaysia Maldives Mali Malta Marshall Islands Martinique Mauritania Mauritius Mayotte Mexico Micronesia, Federated States of Moldova, Republic of Monaco Mongolia Montenegro Montserrat Morocco Mozambique Myanmar Namibia Nauru Nepal Netherlands New Caledonia New Zealand Nicaragua Niger Nigeria Niue Norfolk Island Northern Mariana Islands Norway Oman Pakistan Palau Palestinian Territory, Occupied Panama Papua New Guinea Paraguay Peru Philippines Pitcairn Poland Portugal Puerto Rico Qatar Réunion Romania Russian Federation Rwanda Saint Barthélemy Saint Helena, Ascension and Tristan da Cunha Saint Kitts and Nevis Saint Lucia Saint Martin (French part) Saint Pierre and Miquelon Saint Vincent and the Grenadines Samoa San Marino Sao Tome and Principe Saudi Arabia Senegal Serbia Seychelles Sierra Leone Singapore Sint Maarten (Dutch part) Slovakia Slovenia Solomon Islands Somalia South Africa South Georgia and the South Sandwich Islands South Sudan Spain Sri Lanka Sudan Suriname Svalbard and Jan Mayen Swaziland Sweden Switzerland Syrian Arab Republic Taiwan, Province of China Tajikistan Tanzania, United Republic of Thailand Timor-Leste Togo Tokelau Tonga Trinidad and Tobago Tunisia Turkey Turkmenistan Turks and Caicos Islands Tuvalu Uganda Ukraine United Arab Emirates United Kingdom United States United States Minor Outlying Islands Uruguay Uzbekistan Vanuatu Venezuela, Bolivarian Republic of Viet Nam Virgin Islands, British Virgin Islands, U.S. Wallis and Futuna Western Sahara Yemen Zambia Zimbabwe < Back Your donation of will work wonders for sick kids Your donation of will work wonders for sick kids Your donation of will be charged on the of next month and the following months thereafter Your donation of will be charged today and on the of the following months thereafter Payment Details Credit Card Direct Debit MastercardVisaAmex Month*010203040506070809101112 Year*20172018201920202021202220232024202520262027202820292030 15th of every month 28th of every month What is CVV? What is Date of Debit? 15th of every month 28th of every month 15th of every month 28th of every month For more information please check our Terms & Conditions Your request is being processed. < Back Other ways you can help Everything we do for sick and injured kids is made possible by the generosity and support of our donors, partners and the community.