Jordan’s story

At just 10 days old Jordan was diagnosed with phenylketonuria, which means he needs to radically control his protein intake.

Jordan will never try a chicken nugget, will never be able to eat the fish he catches, or enjoy a hot Milo on a cold night.

At just 10 days old Jordan was diagnosed with phenylketonuria (PKU), which means he needs to radically control his protein intake.

As an infant this meant drinking a low-protein formula. Now he’s older Jordan proudly announces to his friends that he’s vegan and he continues to drink a formula, called a PKU Cooler, three times a day to keep his brain healthy. It’s his favourite drink.

“I was heartbroken at the thought my child will never be able to enjoy the foods his peers will"

If PKU is not treated, phenylalanine, an amino acid in the blood, can build up to harmful levels in the body, causing intellectual disability and other serious health problems.

Mum, Rebecca recalls “I was heartbroken at the thought my child will never be able to enjoy the foods his peers will. I then thought if I failed his dietary needs in any way, he would suffer brain damage.

After a week or so, I consoled myself with the fact that his condition does not produce an anaphylactic condition which could kill him, unlike the consequences for children with severe allergies.”

Jordan’s mental development has been excellent, when he’s not helping out with the animals on his family’s 10 acre property, he loves to draw and play music.

Up until a few years ago the family visited the Queensland Children’s Hospital three to four times a year, now because Jordan is doing so well, they are able to stay in touch through the telehealth system.

Jordan is one of 20 ambassadors for the Woolworths Regional Wall Tokens campaign.

By purchasing a $2 wall token from now until the end of September, you are helping fund equipment and programs in your local hospital, which help families like Jordan’s through an emotional, stressful, and at times uncertain journey.

Woolworths Regional Wall Tokens is an opportunity to highlight some of the brave kids throughout Queensland and northern New South Wales, who you can help by purchasing a wall token.

Other ways you can help

Everything we do for sick and injured kids is made possible by the generosity and support of our donors, partners and the community.