Meet our Wonder Warriors

Lilly has spent much of her six years at the Children’s Hospital. She has a rare auto-immune disease, epilepsy, severe anxiety, bronchiectasis and parechovirus and has already had more medical procedures than most adults ever have.

Sophie was diagnosed with stage 4 neuroblastoma at just three years old and spent 16 months battling this horrible disease.  Her treatment, which went on for almost 2 years, included 12 rounds of radiation, multiple surgeries and a bone marrow transplant.

During a scan at just 21 weeks pregnant, Tamara and Simon Jackson received the devastating news that their unborn baby had Hypoplastic left heart complex, a condition which causes the left side of the heart to hardly function.

Mila’s mum took her to the doctor thinking she just had tonsillitis, only to discover she had leukaemia.

Two-year-old Darcy is a determined little boy, defying all the odds by living with an extremely rare chromosome disorder. So rare in fact, he is believed to be the only person in the world with this condition.

Imagine having to tell your beautiful six-year-old daughter – who has already survived an aggressive cancer once – she has to fight it all over again?

Edi was a completely healthy, 20 month old when parents Kimberley and Scott noticed a small lump behind his ear. The lump proved to be cancerous.

Just like her mum and two big sisters, eight-year-old Savannah has Ehlers Danlos Syndrome (EDS). EDS is a genetic connective tissue disorder.

Since she was only four years old, Maddison has been battling a rhabdomyoscaroma – a cancer made up of cells that normally develop into skeletal muscles.

It wasn’t until aged four that Jaimee was diagnosed with diplegic cerebral palsy and the family’s medical journey took off.

In December 2018 Keynen finished kindy and was looking forward to starting school, but by mid-December he was struck down by a nasty tropical ear infection and a severe case of gastro.

When Renata felt a hard mass on the right side of Phoenix’s tummy, she knew she needed to get him to a doctor. An ultrasound confirmed her one-year-old son had a stage four Wilms’ tumour.

If Jordan’s phenylketonuria is not treated, phenylalanine, an amino acid in the blood, can build up causing intellectual disability and other serious health problems.

There were many treatments and complications in the first three weeks of Alexander’s life, including a cardiac arrest and a large operation to repair a diaphragmatic hernia.

Nancellar experienced three blackouts and was extremely pale. After multiple tests, the family learnt the devastating news that he had acute lymphoblastic leukaemia.

After months of feeling unwell, unexplained aches and pains, as well as weight loss, Violet, aged six at the time, was diagnosed with stage 4 neuroblastoma.

At just four weeks old, Declan was losing weight and had what his Mum Sharyn described as “a smokers cough”. Tests revealed Declan had cystic fibrosis.

At only nine weeks old, Callum’s doctors discovered he had airway deformities, which meant he had to undergo major surgery to help him breath.

One-year-old Digby loves playing with his trucks and riding his bike, but at seven months he had recurrent viruses that he never seemed to recover from.

Ethan and his twin brother Harrison were born unexpectedly early at 27 weeks. The tiny boys were cared for on the Neonatal Intensive Care Unit, unfortunately after just 8 days of life, little Harrison passed away.

During the late stages of Brianna’s labour, the midwives realised something wasn’t right. When baby William arrived he was having trouble breathing and was airlifted to Brisbane.

Identical twin Rebecca had been sick for two weeks, initially doctors thought she had a viral infection but a chest x-ray revealed pneumonia and a collapsed lung.

When Kimberley took her six-year-old son Patrick to Townsville Hospital Emergency Department, she wasn’t prepared for the news that he had leukaemia.

When Amber found out her baby had spina bifida, she felt shock, devastation, grief for the loss of future plans and fear of an unknown future for her daughter.