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Cadel was just 5 days old when he was diagnosed with cystic fibrosis, a life-threatening condition for which there is no cure.

Cadel, 4 years, cystic fibrosis

STORY

Cystic fibrosis is a genetic disease which causes mucus in the body to become sticky and thick.

Little kids like Cadel struggle to breathe and have problems with nutrition, digestion and growth.

If funding and research into cystic fibrosis does not continue, children like Cadel will likely not reach their 40th birthday.

Cadel has to take as many as 10 different medications every day. He’s been admitted to hospital 35 times in his short life. He could be rushed in again at any time. And all of that is to just keep him living day by day. That’s why it’s so vital the children’s hospital has the latest lifesaving equipment.

“Research is so valuable. Cystic fibrosis (CF) treatments have come so far in the last few decades but we still have a long way to go before CF stands for Cure Found.”

We face a race against time to find new treatments, using the latest medical equipment to give children like Cadel the longer, healthier lives.

Thankfully, Cadel is in the best place he can be. The Lady Cilento Children’s Hospital has the biggest cystic fibrosis clinic in Australia, looking after around 420 children from across Queensland and northern New South Wales.

“Music therapy is a great distraction for Cadel – to see someone that will just sit and play with him and is not there to poke or prod him is a big relief to him.”

Cystic fibrosis is a life-shortening disease – but research over the past few decades has increased the lifespan of sufferers by almost 25 years. But little kids like Cadel deserve more than 31 years of life. He deserves a fuller life like his friends and family.