Rylee’s story

The youngest of four kids, Rylee seemed to be doing so well, when at just 16 months of age she collapsed.

Rushed from her GP to hospital, her mum Nikki began to feel very sick with each new specialist called to assess her baby girl.

“When you go to hospital and it’s not just one doctor who comes in, but one, then another, then another, and finally they say, ‘We need to take your daughter for an MRI’ that’s when you think: “Oh God, it’s serious.”’

The MRI revealed that inside Rylee’s tiny head grew an 8cm tumour that was pressing on her brain.

Nikki was terrified, wondering: ‘Is she going to live?’
It was just a simple stumble that prompted Nikki to take her baby to the GP, yet within hours she was fighting for her life. The odds were very much against Rylee surviving.

Today 8 in 10 children diagnosed with brain cancer die. It is why the Children’s Hospital Foundation is so committed to creating a world-class brain cancer research program, that aims to significantly reduce the number of children lost to this deadly disease.

We need your help to turn make a positive difference to these survival rates.

Nikki was prepared to do anything to keep her baby girl alive, but nothing could have prepared
her for the years of pain ahead.

To shrink her brain tumour, Rylee underwent radiation. It wasn’t just immensely painful for
Rylee, but it did a lot of damage to her tiny body. With every treatment, there would be more pain,
and more doubt over the damage that had been done.

All in all, Rylee underwent 30 rounds of radiation therapy, and three major surgeries, just to bring
her brain tumour under control.

Nikki wondered, if she survived, what kind of future would Rylee have?

It’s nothing short of a miracle that Rylee has survived. But it shouldn’t be.

The new Centre for Child and Adolescent Brain Cancer Research will be an Australian first.

This world-class research program will bring together some of Australia’s leading brain cancer researchers. It will help us to overcome the critical barriers for brain cancer research that has held back survival rates for 30 years.

Other ways you can help

Everything we do for sick and injured kids is made possible by the generosity and support of our donors, partners and the community.