Tommy’s story Home Tommy’s story Tommy has been a fighter since before he was born. At 28 weeks, his mum Cindy was told her little boy had a rare genetic disorder and the devastating reality that her unborn son had a 2 per cent chance of survival. “We had a scan which showed that all his long bones were not just short and bowed, but they had an appearance of being fractured too,” Cindy recalled. The official diagnosis of hypophosphatasia came four months after Tommy was born – after months of genetic testing. Tommy spent the first part of his life at Queensland Children’s Hospital in Brisbane, separated from his dad and older siblings who remained in Cloncurry. “Tommy was in Paediatric Intensive Care Unit (PICU) for 210 days." “He was on Non-Invasive Ventilation, and eventually a subcutaneous injection under the skin three days a week of a drug that is approved on compassionate grounds as it is not yet available in Australia.” Tommy is proving to be a little battler – but the journey ahead is complicated and complex. “This wonderful drug that we are fortunate to receive means that we are back together as a family and we have many doctors and staff to thank for that,” Cindy said. “Tommy has regular three-monthly trips back to Queensland Children’s Hospital for check-ups and has three-monthly bloods at the same time. He will have to have his Strensiq injections for the rest of his life, the only thing that might change will be the frequency and the dose. “There are plans in progress to have his teeth crowned and also remove his tonsils and adenoids. “He may also have to have more cranial vault surgery due to his head circumference measurements not increasing like they should. “We hope that he can live as normal a life as possible. No one knows the outcome or length of Tommy's journey, however, we are confident.Donate now “Considering Tommy had a 2 per cent chance of survival and 50 per cent chance later on of leaving hospital, every day is a milestone for us and we cherish every moment we have with him, as nobody knows what the future holds.” While Tommy was in hospital, he loved music therapy, pet therapy and visits from Children’s Hospital Foundation volunteers to play games. Tommy is one of 19 ambassadors for the Woolworths Regional Wall Tokens campaign. By purchasing a $2 wall token from now until the end of September, you are helping fund equipment and programs in your local hospital, which help families like Tommy’s through an emotional, stressful, and at times uncertain journey. Woolworths Regional Wall Tokens is an opportunity to highlight some of the brave kids throughout Queensland and northern New South Wales, who you can help by purchasing a wall token. Read more of our ambassador stories Your donation will help fund life-saving medical research and critical equipment, and provide the highest level of care for sick kids, just like Eli. Donate Once Donate Monthly Your donation will work wondersfor sick kids today.Would you like to donate monthly? Your donation of will work wonders for sick kids Your Details Can't find your address? State*ACTNSWNTQLDSATASVICWA Country Afghanistan Åland Islands Albania Algeria American Samoa Andorra Angola Anguilla Antarctica Antigua and Barbuda Argentina Armenia Aruba Australia Austria Azerbaijan Bahamas Bahrain Bangladesh Barbados Belarus Belgium Belize Benin Bermuda Bhutan Bolivia, Plurinational State of Bonaire, Sint Eustatius and Saba Bosnia and Herzegovina Botswana Bouvet Island Brazil British Indian Ocean Territory Brunei Darussalam Bulgaria Burkina Faso Burundi Cambodia Cameroon Canada Cape Verde Cayman Islands Central African Republic Chad Chile China Christmas Island Cocos (Keeling) Islands Colombia Comoros Congo Congo, the Democratic Republic of the Cook Islands Costa Rica Côte d'Ivoire Croatia Cuba Curaçao Cyprus Czech Republic Denmark Djibouti Dominica Dominican Republic Ecuador Egypt El Salvador Equatorial Guinea Eritrea Estonia Ethiopia Falkland Islands (Malvinas) Faroe Islands Fiji Finland France French Guiana French Polynesia French Southern Territories Gabon Gambia Georgia Germany Ghana Gibraltar Greece Greenland Grenada Guadeloupe Guam Guatemala Guernsey Guinea Guinea-Bissau Guyana Haiti Heard Island and McDonald Islands Holy See (Vatican City State) Honduras Hong Kong Hungary Iceland India Indonesia Iran, Islamic Republic of Iraq Ireland Isle of Man Israel Italy Jamaica Japan Jersey Jordan Kazakhstan Kenya Kiribati Korea, Democratic People's Republic of Korea, Republic of Kuwait Kyrgyzstan Lao People's Democratic Republic Latvia Lebanon Lesotho Liberia Libya Liechtenstein Lithuania Luxembourg Macao Macedonia, the former Yugoslav Republic of Madagascar Malawi Malaysia Maldives Mali Malta Marshall Islands Martinique Mauritania Mauritius Mayotte Mexico Micronesia, Federated States of Moldova, Republic of Monaco Mongolia Montenegro Montserrat Morocco Mozambique Myanmar Namibia Nauru Nepal Netherlands New Caledonia New Zealand Nicaragua Niger Nigeria Niue Norfolk Island Northern Mariana Islands Norway Oman Pakistan Palau Palestinian Territory, Occupied Panama Papua New Guinea Paraguay Peru Philippines Pitcairn Poland Portugal Puerto Rico Qatar Réunion Romania Russian Federation Rwanda Saint Barthélemy Saint Helena, Ascension and Tristan da Cunha Saint Kitts and Nevis Saint Lucia Saint Martin (French part) Saint Pierre and Miquelon Saint Vincent and the Grenadines Samoa San Marino Sao Tome and Principe Saudi Arabia Senegal Serbia Seychelles Sierra Leone Singapore Sint Maarten (Dutch part) Slovakia Slovenia Solomon Islands Somalia South Africa South Georgia and the South Sandwich Islands South Sudan Spain Sri Lanka Sudan Suriname Svalbard and Jan Mayen Swaziland Sweden Switzerland Syrian Arab Republic Taiwan, Province of China Tajikistan Tanzania, United Republic of Thailand Timor-Leste Togo Tokelau Tonga Trinidad and Tobago Tunisia Turkey Turkmenistan Turks and Caicos Islands Tuvalu Uganda Ukraine United Arab Emirates United Kingdom United States United States Minor Outlying Islands Uruguay Uzbekistan Vanuatu Venezuela, Bolivarian Republic of Viet Nam Virgin Islands, British Virgin Islands, U.S. Wallis and Futuna Western Sahara Yemen Zambia Zimbabwe < Back Your donation of will work wonders for sick kids Your donation of will work wonders for sick kids Your donation of will be charged on the of next month and the following months thereafter Your donation of will be charged today and on the of the following months thereafter Payment Details Credit Card Direct Debit MastercardVisaDinersAmexDiscover Month*010203040506070809101112 Year*20172018201920202021202220232024202520262027202820292030 15th of every month 28th of every month What is CVV? What is Date of Debit? 15th of every month 28th of every month 15th of every month 28th of every month For more information please check our Terms & Conditions Your request is being processed. < Back Other ways you can help Everything we do for sick and injured kids is made possible by the generosity and support of our donors, partners and the community.